To develop real life stories to raise awareness of hATTR amyloidosis and the importance of early diagnosis for the company's European educational public-facing campaign.
Video ethnography was carried out across 7 EU markets with people living with the condition from all different walks of life. Translations and closed capture work was added to the films to support uptake and dissemination by local patient advocacy groups.
The videos are the cornerstone of the company’s internal and external disease awareness plans, and part of the collaboration with the leading international amyloidosis umbrella patient association. The stories have driven traffic to the website, been used as part of media events, supported local patient advocacy groups helping raise the overall profile of the disease. They have been used to educate and motivate Alnylam employees on what it is like to live with the disease and the need for new treatments to transform lives.
See the videos at: www.amyloidosisalliance.org/inspirational-stories
What are people's relationships with water in Townships in South Africa?
What are the needs of early stage IoT companies designing for smart homes?
What are the purchasing needs of SME businesses?
What is the impact of multiple sclerosis on mobility?
How do people buying new cars go about their purchase?
Why do some patients choose not to fully report symptoms?
What are the challenges for people living with bipolar and schizophrenia?
What relationship do homeless young adults have with their health?
How do we engage COPD patients so they can choose to have a more positive outlook?
We want to immerse our leadership into the world of Crohn’s patients
How are people affected by APKD?
We want a 360 fully immersive view of the patient experience
We want to raise awareness of the importance of early diagnoses for a rare disease
What does 'clean' mean to people living in rural and urban Indonesia?
How do people manage fever in rapidly developing countries?
How can low cost technology support learning in the world’s poorest regions?